Vera Rubicon

Vera Rubicon

Denne bloggen...

Handler for det meste om vår sønn Leon og hans situasjon med Jacobsens syndrom.
I tillegg er denne bloggen stappfull av kjærlighet, frustrasjon og humor.
Her legges også ut noen av blinkskuddene vi tar med kameraet vårt.

This blog is about our son Leon and he's situation with Jacobsen syndrome.
This blog is also full of love, frustration and humor.
Some of our best shots with the camera is also here.

New friends :)

EnglishPosted by Vera Rubicon Wed, October 14, 2009 08:05:00
What would I do withouth the internett??? I haven't been able to find no other families with Jacobsen syndrome in Norway, but thanks to internett I found families in other countreys!! smiley

It is so important that we stick together! This syndrome is so rare and there's a lack of information about this. I find it very nessesary to get some information and tips from other parents with Jacobsen syndrome.

I've just got to know a mother in Sweden who also got a child with JS. Her daughter is born exactly 1 month after my son Leon and she has some simulare problems. I'm so very thankfull for getting knowing her. We send long e-mails to eachother and she is helping me a lot just by being in the same situation. I'm so glad I found you Emina. smiley And its so easy to write to her beacuse she understand my Norwegian ;)

I'm also writing to Zuzana from Czech Republic and I'm very thankfull for getting to know her and her son to!

I'm hoping to get knowing more families and I think we'll only get stronger togheter! And mabye we meet someday? I know there's a Intertational conference for JS this october in Germany, but I found out to late to join this time.
I'm hoping to join the next time then! http://www.bazzo.net/index.asp